British Society for Medical Dermatology The purpose of the British Society for Medical Dermatology is to promote academic and clinical interest in the practice and study of medical dermatology as well as collaboration between dermatologists and other medical specialists with the goal of improving the care of patients.
http://www.medderm.org.uk/

 General Information

The Society for Investigative Dermatology
526 Superior Avenue East, Suite 540
Cleveland, OH 44114
Phone:  216-579-9300
Fax:  216-579-9333
Web Page www.sidnet.org
Email:  sid@sidnet.org

American Academy of Dermatology
930 E. Woodfield Road
P. O. Box 4014
Schaumburg, IL 60168-4014
Phone: 847-330-0230
Fax: 847-240-1859
Web page: www.aad.org
 

Patient Support Groups

Albinism
National Foundation for Vitiligo & Pigment Disorders
9032 South Normandy Drive
Centerville, OH 45459
Phone: 513-885-5739

National Organization for Albinism and Hypopigmentation (NOAH)
P. O. Box 959

East Hampstedd, NH 03826
Phone: 215-545-2322 or
800-473-2310
Email: webmaster@albinism.org
Web page: www.albinism.org

Alopecia Areata
National Alopecia Areata Foundation
P. O. Box 150760
San Rafael, CA 94915-0760
Phone: 415-472-3780
Fax: 415-472-5343
Email: info@naaf.org
Web page: www.naaf.org

Arthritis
Arthritis Foundation
P. O. Box 7669
Atlanta, GA 30357-0669
Phone: 404-872-7100 or 800-283-7800
Info Line: 800-568-4045
Web page: www.arthritis.org

Hidradenitis Suppurativa Foundation, Inc.
P. O. Box 861

Valley Center, CA 29082

Email: info@hs-foundation.org  
Web page:   http://www.hs-foundation.org/


Behcet’s Syndrome

American Behcet’s Foundation, Inc.
P. O. Box 54063
Minneapolis, MN 55454-0063
Phone: 800-723-4238 or
800-7BEHCETS
 

Cancer

American Cancer Society
1599 Clifton Road, NE
Atlanta, GA 30329
Phone: 800-227-2345
Web page: www.cancer.org

National Cancer Institute
Public Inquiries Office
6116 Executive Blvd., Suite 300
Bethesda, MD 20892-8322
Phone: 800-4-CANCER
Web page: www.cancer.gov
 

Chicken Pox/Shingles (Varicella-zoster)

VZV Research Foundation
603 West 115 St.

Suite 371
New York, NY 10025
Phone: 212-371-7280
Fax: 212-838-0380
Web page: www.vzvfoundation.org
 

Cutaneous T-Cell Pymphoma – Mycosis Fungoides

CTCL-MF E-mail Support List
To subscribe, send email to: listserv@acor.org
In body of the message write "Subscribe CTCL-MF."  Owned/founded by:
Judy Jones - judy@mffoundation.org

Cutaneous Lymphoma Foundation
PO Box 374
Birmingham, MI 48012-0374
Phone: 248-644-9014
Fax: 248-644-9014
Email: info@clfoundation.org
Web page: www.clfoundation.org
 

Dermatitis Herpetiformis

American Celiac Society
PO Box 23455
New Orleans, LA 70183
Phone:  504-737-3293
info@americanceliacsociety.org

Celiac Disease Foundation
13251 Ventura Blvd., Number 1
Studio City, CA 91604-1838
Phone: 818-990-2354
Fax: 818-990-2379
Web page: www.celiac.org

Celiac Sprue Association/USA
P. O. Box 31700
Omaha, NE 68131-0700
Phone: 402-558-0600 or
877-CSA-4-CSA
Fax: 402-558-1347
Web page: www.csaceliacs.org

Gluter Intolerance Group (Dermatitis Herpetiformis)
31214 124th Ave. SE

Auburn, WA 98092
Phone: 253-833-6655
Fax: 253-833-6675
Web page: www.gluten.net
 

Dermatomyositis

Myositis Association of America
1737 King St. Suite 600
Alexandria, VA 22314
Phone: 703-299-4850 / 800-821-7356

Fax:  202-466-8940
Web page: www.myositis.org

Muscular Dystrophy Association
3300 E. Sunrise Drive
Tucson, AZ 85718
Phone: 800-572-1717
Fax: 601-529-5300
Web page: www.mdausa.org
 

Dermatology

Dermatology Foundation
1560 Sherman Avenue
Suite 870
Evanston, IL 60201-4808
Phone: 847-328-2256
Fax: 847-328-0509
Web page: www.dermatologyfoundation.org

International Foundation for Dermatology
Willan House
4 Fitzroy Square
London W1T 5HQ
UNITED KINGDOM
Fax: +44 20 7388 5263
Web page: www.ifd.org
 

Dermatopathology

Dermatopathology Foundation
P. O. Box 377
Canton, MA 02021
Phone: 617-821-0648
Contact: Wendy Christison
 

Eczema

National Eczema Society
Hill House, Highgate Hill
London, N19 5NA, United Kingdom
Phone: 020-7281-3553
Fax: 020-7281-6395
Email: helpline@eczema.org
Web page: www.eczema.org

National Eczema Association for Science and Education
4460 Redwood Highway, Suite 16-D
San Rafael, CA 94903-1953
Phone: 415-499-3474 or
800-818-7546
Fax: 415-472-5345

Email:  info@nationaleczemaorg
Web page: www.nationaleczema.org
 

Ehlers Danlos Syndrome

Ehlers Danlos National Foundation
3200 Wilshire Blvd., Suite 1601, South Tower
Los Angeles, CA 90010
Phone: 213-368-3800
Fax: 213-427-0057
Web page: www.ednf.org
 

Epidermolysis Bullosa

Dystrophic Epidermolysis Bullosa
Research Association of America
(D.E.B.R.A. of America, Inc.)
16 East 41st St., 3rd Floor
New York, NY 10018
Phone: 212-868-1573
Email: staff@debra.org
Web page: www.debra.org
 

Genetic Disease

The Alliance of Genetics Support Groups
4301 Connecticut Ave., NW, Suite 404
Washington, DC 20008-2369
Phone: 202-966-5557
Fax: 202-966-8553
Email: info@geneticalliance.org
Web page: www.geneticalliance.org

Hansen’s Disease
See Leprosy
 

Hemochromatosis

Hemochromatosis Research Foundation
P. O. Box 8569
Albany, NY 12208
Phone: 518-489-0972
Fax: 518-489-0227
 

Herpes

Herpes Resource Center
American Social Health Association
P. O. Box 13827
Research Triangle Park, NC 27709
Phone: 919-361-8400 or
800-230-6039
Web page: www.ashastd.org
 

Histiocytosis

Histiocytosis Association of America, Inc.
332 North Broadway
Pitman, NJ 08071
Phone: 856-589-6606 or
800-548-2758 (US and Canada only)
Email: jmt4histio@aol.com
Web page: www.histio.org
 

Human Papillomavirus

HPV Support Program
American Social Health Association
P. O. Box 13827
Research Triangle Park, NC 27709
Phone: 919-361-8400
Fax: 919-361-8425
Web page: www.ashastd.org
 

Ichthyosis

Foundation for Ichthyosis and Related Skin Types, Inc. (FIRST)
2616 North Broad St.

Colmar, PA 18915
Phone: 215-997-9400
Fax: 215-997-94033
Email: info@firstskinfoundation.org
Web page: www.scalyskin.org
 

National Registry for Ichthyosis and Related Disorders

University of Washington
Department of Dermatology
1959 N.E. Pacific Street, Room BB1353
Box 356524
Seattle, WA 98195
Phone: 800-595-1265
Email: info@skinregistry.com
Web page: www.skinregistry.org
 

Leprosy (Hansen’s Disease)

Communications Unit
Special Programme for Research and Training in Tropical Disease (TDR)
World Health Organization
1211 Geneva 27
Switzerland
Phone: 41-22-791-3725
Fax: 41-22-791-4854
Email: tdr@who.int
Web page: www.who.int

Damien Dutton Society for Leprosy Aid
616 Bedford Avenue
Bellmore, NY 11710-3619
Phone: 516-221-5829

Lupus Erythematosus
American Lupus Society
260 Maple Court, Suite 123
Ventura, CA 93003
Phone: 805-339-0443 or
800-331-1802 (Info Line)
Fax: 805-339-0467

Lupus Foundation of America, Inc.
2000 L Street NW, Suite 710
Washington, DC 20036
Phone: 202-349-1155 or
800-558-0121
Fax: 202-349-1156
Web page: www.lupus.org

Lymphomatoid Papulosis (and other Ki-1 positive cutaneous lymphomas)
Lymphomatoid Papulosis Central Registry
Department of Pathology Beth Israel Hospital
330 Brookline Avenue
Boston, MA 02215
Phone: 627-735-5886
 

Melanoma

American Melanoma Foundation
2160 Fletcher Parkway, Suite O
El Cajon, CA 92020
Phone: 619-448-0991
Fax: 619-448-2902
Email: sunsmartz@melanomafoundation.org
Web page: www.melanomafoundation.org
 

Neurofibromatosis

National Neurofibromatosis Foundation
95 Pine Street, 16th Floor
New York, NY 10005
Phone: 212 344-6633 or
800 323-7938
Fax: 212 747-0004
E-mail: nnff@nf.org
Web page: www.ctf.org  or www.neurofibromatosis.org
 

Ostomy

United Ostomy Association, Inc.
P. O. Box 512

Northfield, MN 55057
Phone: 949-660-8624 or
800-826-0826
Fax: 949-660-9262
Email: info@uoa.org
Web page: www.uoa.org

Patient Advocates
Coalition of Patient Advocates
6600 S.W. 92nd Avenue, Suite 300
Portland, OR 97223
Phone: 503-244-7404
Fax: 503-245-0626
 

Pemphigus and Pemphigoid

The International Pemphigus & Pemphigoid Foundation
2701 Cottage Way #16
Sacramento, CA 95825
Phone: 916 922-1298

Fax: 916- 922-1458
email: pemphigus@pemphigus.org

The Pemphigus and Pemphigoid Society
15934 Hesperian Blvd., #122
San Lorenzo, CA 94580
Phone: 510-755-4266
Email: pps@1clever.org
Web page: www.1clever.org
 

Porphyria

The American Porphyria Foundation
4900 Woodway, Suite 780
Houston, TX 77056-1837
Toll free: 866-APF-3635
Phone: 713-266-9617
Fax: 713-840-9552
Email: porphyrus@aol.com
Web page: www.porphyriafoundation.com
 

Pseudoxanthoma Elasticum (PXE)

National Association for Pseudoxanthoma Elasticum, Inc. (NAPE)
8760 Manchester Road, Suite 200
St. Louis, MO 63144-2724
Phone: 314-962-0100
Fax: 314-962-0100
Email: napestlouis@sbcglobal.net
Web page: pxenape.org

PXE International, Inc.
4301 Connecticut Avenue, NW, Suite 404
Washington, D.C. 20008-2369
Phone: 202.362.9599
Fax: 202.966.8553
Email: info@pxe.org
Web page: www.pxe.org 
 

Psoriasis

National Psoriasis Foundation
6600 S.W. 92nd, Suite 300
Portland, OR 97223
Phone: 503-244-7404 or 800-723-9166
Fax: 503-245-0626
Web page: www.psoriasis.org
 

Rare Disorders

Office of Rare Diseases
National Institutes of Health
6100 Executive Boulevard
Room 3A07, MSC 7518
Bethesda, Maryland 20892-7518
Phone: 301-402-4336
Fax: 301-480-9655
Email: ord@od.nih.gov
Web page: www.rarediseases.info.nih.gov

National Organization for Rare Disorders
55 Kenosia Avenue
PO Box 1968
Danbury, CT 06813-1968
Phone: 203-744-0100 or
800-999-6673 (voicemail only)
TDD Number: 203-797-9590
Fax: 203-798-2291
Email: orphan@rarediseases.org
Web page: www.rarediseases.org
 

Rosacea

National Rosacea Society
196 James St
Barrington, IL 60010
Phone: 800-NO-BLUSH
Email: rosaceas@aol.com
Web page: www.rosacea.org

Sarcoidosis

Sarcoidosis Family Aid & Medical Research Foundation
460 Central Avenue
East Orange, NJ 07018
Contact: Geneva Ausley, President & Founder
Phone: 201-399-3644 or
800-203-6429
 

Scleroderma

Scleroderma Federation, Inc.
Peabody Office Building
300 Rosewood Drive, Suite 105

Danover, MA 01923
Phone: 978-463-5843 or
800-722-HOPE
Fax: 978-750-9902
Email: sfinfo@scleroderma.org
Web page: www.scleroderma.org

Scleroderma Research Foundation
220 Montgomery St, Suite 1411
Santa Barbara, CA 94104
Phone: 805-563-9133 / 800-441-CURE
Fax: 805-563-2402
Web page: www.srfcure.org

Scleroderma Society
1725 York Avenue, Suite 29-F
New York, NY 10128
Phone: 212-427-7040


Self Help

National Self-Help Clearinghouse
Graduate School and University Center
of the City University of New York
365 5th Avenue, Suite 3300
New York, NY 10016
Web page: www.selfhelpweb.org
 

Sjogren’s Syndrome

National Sjögren's Syndrome Association
P.O. Box 22066
Beachwood, OH 44122
Phone: 216-292-3866 or
800-395-NSSA
Fax: 216-292-4955
E-mail: NickofOhio@aol.com
Web page: www.sjogrenssyndrome.org

Sjögren's Syndrome Foundation
8120 Woodmont Ave., Suite 530
Bethesda, MD 20814
Phone: 301-718-0300
Fax: 301-718-0322
Web Page: www.sjogrens.org
 

Skin Research & Education for ALL Skin Disorders

American Skin Association
346 Park Avenue South, 4th Floor
New York, NY 10010
Phone: 212-889-4858 or
800-499-SKIN
Fax: 212-889-4959
Web page: www.americanskin.org

Dermatology Foundation
1560 Sherman Avenue, Suite 870
Evanston, IL 60201-4808
Phone: 847-328-2256
Fax: 847-328-0509
Email: dfgen@dermatologyfoundation.org
Web page: www.dermatologyfoundation.org
 

Skin Cancer
Also see Melanoma

Skin Cancer Foundation
149 Madison Ave, Suite 901
New York, NY 10016
Phone: 800-SKIN-490
Fax: 212-725-5176
Email: info@skincancer.org
Web page: www.skincancer.org
 

Vitiligo

Frontier’s International Vitiligo Foundation
4 Rozina Court
Owings Mills, MD 21117

National Foundation for Vitiligo & Pigment Disorders
9032 South Normandy Drive
Centerville, OH 45459
Phone: 513-885-5739

National Organization for Albinism & Hypopigmentation (NOAH)
P. O. Box 959
East Hampstead, NH 03826
Phone: 603-887-2310
800-473-2310
Email: webmaster@albinism.org
Web page: www.albinism.org

National Vitiligo Foundation, Inc.
700 Olympic Plaza Circle, Suite 404
Tyler, TX 75701
Phone: 903-595-3713
Fax: 903-593-1545
Email: info@nvfi.org
Web page: www.vitiligofoundation.org

Vitiligo Support International

P.O. Box 4008

Valley Village, CA 91617-0008
Phone:  818-752-9002

Fax:  818-337-7268

info@vitiligosupport.org

www.vitiligosupport.org